Who is working on what

1,894 research projects on ME/CFS and long COVID, and 297 research groups, networks, biobanks, registries and organisations.

Built 2026-11-02 from the ME/CFS Research Register (149 European projects), NIH RePORTER (419 grants since 2016), UKRI Gateway to Research (77), EU CORDIS (34), CIHR (161 Canadian grants since 2010), PolyBio (48), the trial registries (1006 trials) and our own survey of organisations · Projects as JSON · Organisations as JSON

587active projects

7name severe or housebound patients in the title

25name exertion, exercise or PEM in the title

About a quarter of patients are housebound or bedbound, yet 7 of 587 active projects say in their title that they study severe patients. Crashes after exertion define the illness, and 25 name exertion or PEM. The open questions page sets out which experiments would most change what we know.

Active projects by topic

Treatment trials255 Epidemiology and care163 Brain and nerves145 Immune system141 Metabolism and blood omics75 Infection and viruses75 Blood flow and vessels57 Muscle, exertion and energy38 Gut and microbiome21 Genetics17 Other13 Hormones6

ME/CFSbothlong COVID

Figure 1. Active projects, by topic and population. A project can count under several topics; topics are assigned from the title and abstract by keyword. Tap a topic to list its projects.

Where the work is

USA275

Germany96

Canada33

Netherlands29

UK20

Austria16

Spain12

China6

Norway6

Sweden5

France5

Brazil4

ME/CFSbothlong COVID

Figure 2. Active projects by lead country, top 12. Trials are counted for every country. Other research is complete only where a public grants database exists (NIH, UKRI, CIHR, the EU, and the six countries of the European register), so the United States and Germany are over-represented. Australian funders (NHMRC, MRFF) and the Open Medicine Foundation are not yet included because their sites refuse automated downloads.

All projects

Groups, networks and resources

Research groups, networks, biobanks, cohorts, registries, data portals, patient organisations, government plans and conferences, each with a checked link. Funders and their open calls are on the funding page.

Missing a project, or something out of date? Write to hello@solvingmecfs.org.