[{"n":"All of Us Research Program","u":"","ty":"biobank","c":"US","d":"EHR + genomes; used for ME/CFS replication","st":"active"},{"n":"BioBank Japan","u":"https://biobankjp.org/en/","ty":"biobank","c":"Japan","d":"Disease biobank; no ME/CFS publication found","st":"active"},{"n":"BC COVID-19 Cohort (linked) and Biobanque québécoise de la COVID-19","u":"","ty":"biobank","c":"Canada","d":"Population-linked COVID cohort; BQC19 used for post-COVID proteomic biomarkers","st":"active"},{"n":"Chilean COVID-19 Genomics Network Biorepository","u":"","ty":"biobank","c":"Chile","d":"COVID and long COVID multi-omics biorepository","st":"active"},{"n":"China Kadoorie Biobank","u":"","ty":"biobank","c":"China","d":"No ME/CFS publication; ckbiobank.org 403","st":"active"},{"n":"Danish Blood Donor Study (DBDS)","u":"https://bloddonor.dk/dbds/","ty":"biobank","c":"Denmark","d":"2.5 million samples from 165,000 donors since 2010; repeated haemoglobin at each donation; linkable to Danish National Patient Registry; no ME/CFS paper found","st":"active"},{"n":"Estonian Biobank","u":"https://genomics.ut.ee/en/content/estonian-biobank","ty":"biobank","c":"Estonia","d":"Genotyped, EHR-linked, recontactable participants; no ME/CFS publication found","st":"active"},{"n":"FinnGen R12 / FinRegistry / Risteys","u":"","ty":"biobank","c":"Finland","d":"G6_POSTVIRFAT endpoint","st":"active"},{"n":"Generation Scotland","u":"https://www.ed.ac.uk/generation-scotland","ty":"biobank","c":"UK","d":"Family-based, EHR-linked; no ME/CFS publication found","st":"active"},{"n":"HUNT Study (Trøndelag)","u":"https://www.ntnu.edu/hunt","ty":"biobank","c":"Norway","d":"250,000 people with questionnaires, measurements, samples since 1984; ME/CFS cases only via linkage (no PubMed ME/CFS paper found)","st":"active"},{"n":"National Biobank of Korea / KoGES","u":"","ty":"biobank","c":"South Korea","d":"nih.go.kr unreachable","st":"active"},{"n":"LifeGene","u":"https://lifegene.se/","ty":"biobank","c":"Sweden","d":"Population cohort; no ME/CFS publication found","st":"active"},{"n":"Lifelines","u":"https://www.lifelines.nl/","ty":"biobank","c":"Netherlands","d":"167,000 participants, 3 generations; chronic fatigue and family recurrence (Bos 2025); functional disorders","st":"active"},{"n":"Million Veteran Program","u":"https://www.mvp.va.gov/","ty":"biobank","c":"US","d":"Over 1 million Veterans; ME/CFS GWAS meta with DecodeME","st":"active"},{"n":"Our Future Health","u":"https://ourfuturehealth.org.uk/","ty":"biobank","c":"UK","d":"Recruiting up to 5 million with genotyping and blood; no ME/CFS publication found","st":"active"},{"n":"Norwegian ME/CFS biobank (Oslo University Hospital; Viken/Lie)","u":"","ty":"biobank","c":"Norway","d":"426 CCC ME/CFS genotyped (HLA, KIR, GWAS), plasma EV proteomics 2026","st":"active"},{"n":"UK ME/CFS Biobank (CureME, LSHTM)","u":"","ty":"biobank","c":"UK","d":"~300 ME/CFS (incl. home-visited severe), MS and healthy controls; herpes serology, BCR/TCR data published","st":"active"},{"n":"UK Biobank","u":"","ty":"biobank","c":"UK","d":"~500k; 5,354 with any ME/CFS evidence; metabolomics, proteomics","st":"active"},{"n":"Sagol Center for Hyperbaric Medicine (Shamir/Assaf-Harofeh)","u":"https://www.shamir.org.il/","ty":"clinic","c":"Israel","d":"Israeli centre running hyperbaric oxygen trials in long COVID.","st":"active"},{"n":"National Reference Centre for Post-Viral Syndromes (MedUni Wien)","u":"https://www.meduniwien.ac.at/","ty":"clinic","c":"Austria","d":"Austrian national reference centre for PAIS/ME/CFS at Medical University of Vienna (Untersmayr-Elsenhuber); DISCOVER-ME lead.","st":"active"},{"n":"Bateman Horne Center","u":"https://batemanhornecenter.org/","ty":"clinic","c":"US","d":"Salt Lake City clinic and research centre for ME/CFS, long COVID, FM; clinician education.","st":"active"},{"n":"Bragée ME/CFS Center (Stockholm)","u":"https://brageeclinics.se/","ty":"clinic","c":"Sweden","d":"Swedish private ME/CFS clinic contributing to CSF proteomics and other research.","st":"active"},{"n":"Charité Fatigue Centrum (Berlin)","u":"https://cfc.charite.de/","ty":"clinic","c":"Germany","d":"Charité outpatient centre and research hub for ME/CFS and post-COVID (Scheibenbogen); trials incl. immunoadsorption, BC007.","st":"active"},{"n":"CHU de Saint-Étienne post-COVID research","u":"https://www.chu-st-etienne.fr/","ty":"clinic","c":"France","d":"Recurring French trial sponsor.","st":"active"},{"n":"Fundació Lluita contra les Infeccions – long COVID unit (Badalona)","u":"https://www.flsida.org/","ty":"clinic","c":"Spain","d":"Recurring long COVID trial sponsor (Germans Trias i Pujol).","st":"active"},{"n":"Ghent University Hospital CVS reference centre","u":"https://www.uzgent.be/","ty":"clinic","c":"Belgium","d":"Belgian CFS reference centre and recurring trial sponsor.","st":"active"},{"n":"Mayo Clinic post-COVID / ME/CFS clinic","u":"https://www.mayoclinic.org/","ty":"clinic","c":"US","d":"Recurring trial sponsor; Mayo ME/CFS consensus recommendations (2021).","st":"active"},{"n":"MRI Chronische Fatigue Centrum für junge Menschen (MCFC, TUM Munich)","u":"","ty":"clinic","c":"Germany","d":"Paediatric/young-adult ME/CFS centre at TUM Klinikum rechts der Isar (Behrends); runs MECFS-R and MLC-R.","st":"active"},{"n":"Schön Klinik Berchtesgadener Land","u":"https://www.schoen-klinik.de/berchtesgadener-land","ty":"clinic","c":"Germany","d":"Rehabilitation clinic sponsoring post-COVID rehabilitation trials.","st":"active"},{"n":"University Health Network (Toronto) post-COVID programme","u":"https://www.uhn.ca/","ty":"clinic","c":"Canada","d":"Recurring Canadian long COVID trial sponsor (Toronto Rehab).","st":"active"},{"n":"Vall d'Hebron ME/CFS unit (Barcelona)","u":"https://vhir.vallhebron.com/","ty":"clinic","c":"Spain","d":"Spanish ME/CFS clinical-research unit and cohort; trials of supplements.","st":"active"},{"n":"Haukeland/Bergen ME/CFS trial cohorts (Fluge/Mella)","u":"","ty":"cohort","c":"Norway","d":"Trial cohorts (rituximab, cyclophosphamide, daratumumab, ResetME) with serum; serum SomaScan 7k 2026","st":"active"},{"n":"Brazil (Paraná long COVID ambispective cohort)","u":"","ty":"cohort","c":"Brazil","d":"No ME/CFS-specific resource found; long COVID cohort protocol only","st":"active"},{"n":"CDC MCAM and Wichita","u":"","ty":"cohort","c":"US","d":"MCAM ~900","st":"active"},{"n":"Charité Fatigue Centre cohorts and biobank (Berlin)","u":"","ty":"cohort","c":"Germany","d":"Post-COVID ME/CFS prospective cohort (42 at 6 mo, PMID 36042189; 20-mo follow-up), immunoadsorption sera, EV/miRNA 2026","st":"active"},{"n":"Canadian Longitudinal Study on Aging","u":"https://www.clsa-elcv.ca/","ty":"cohort","c":"Canada","d":"Ages 45-85; no ME/CFS publication found","st":"active"},{"n":"CONVALESCENCE (UK longitudinal-study long COVID)","u":"","ty":"cohort","c":"UK","d":"Not isolated in PubMed searches","st":"active"},{"n":"DanFunD (Danish study of Functional Disorders)","u":"","ty":"cohort","c":"Denmark","d":"~9,656 adults screened for functional somatic syndromes incl. CFS-like; follow-up","st":"active"},{"n":"Dubbo Infection Outcomes Study","u":"","ty":"cohort","c":"Australia","d":"Prospective post-infective fatigue after EBV, Q fever, Ross River; depression PRS paper 2026","st":"active"},{"n":"INSPIRE (Rush)","u":"","ty":"cohort","c":"US","d":"6,000 COVID-tested adults","st":"active"},{"n":"Japanese ME/CFS deep phenotyping (RIKEN/Osaka)","u":"","ty":"cohort","c":"Japan","d":"48 ME/CFS, 52 controls; labs, metabolomics, transcriptomics, microbiome","st":"active"},{"n":"Johns Hopkins COVID Long Study","u":"","ty":"cohort","c":"US","d":"US nationwide prospective long COVID","st":"active"},{"n":"Johns Hopkins post-COVID ME/CFS blood-brain barrier study","u":"","ty":"cohort","c":"US","d":"Target 200","st":"active"},{"n":"Latvian ME/CFS cohort and samples (Rīga Stradiņš University, Murovska group)","u":"","ty":"cohort","c":"Latvia","d":"ME/CFS with HHV-6/7, EBV, CMV PCR/serology; activin B; miRNA; outpatient clinical profile (n=65)","st":"active"},{"n":"MoBa (Norwegian Mother, Father and Child Cohort)","u":"https://www.fhi.no/en/ch/studies/moba/","ty":"cohort","c":"Norway","d":"Mother-father-child trios; no ME/CFS publication found; linkable to NPR","st":"active"},{"n":"Mount Sinai CoRE patient-reported treatment-outcomes cohort (Putrino)","u":"","ty":"cohort","c":"US","d":"Patient-reported treatment outcomes ME/CFS + long COVID (PNAS 2025)","st":"active"},{"n":"NCNP Japan ME/CFS cohort (Yamamura/Ono)","u":"","ty":"cohort","c":"Japan","d":"Autoantibodies to adrenergic/muscarinic receptors, BCR repertoire, DKI/free-water MRI, amygdala volumetry (2026)","st":"active"},{"n":"NIH intramural PI-ME/CFS deep phenotyping","u":"","ty":"cohort","c":"US","d":"17 cases deep phenotyping","st":"active"},{"n":"Northwestern/DePaul college infectious mononucleosis prospective cohort (Jason, Katz)","u":"","ty":"cohort","c":"US","d":"4,501 students enrolled before illness; serum/blood pre-illness, during IM, 6 mo; ME/CFS incl. severe; 7-year follow-up 2026; pre-illness metabolomics","st":"active"},{"n":"Norwegian adolescent acute EBV cohort (CEBA)","u":"","ty":"cohort","c":"Norway","d":"Adolescents followed 6 months after acute EBV, predictors of chronic fatigue","st":"active"},{"n":"OMF Severely Ill Patient Study (SIPS)","u":"https://www.omf.ngo/","ty":"cohort","c":"US","d":"Deep phenotyping of severely ill ME/CFS patients (Stanford/OMF).","st":"ended"},{"n":"PHOSP-COVID","u":"","ty":"cohort","c":"UK","d":"Post-hospitalisation COVID; deep phenotyping and biobank","st":"active"},{"n":"Q fever fatigue syndrome cohort (Netherlands outbreak 2007-10)","u":"","ty":"cohort","c":"Netherlands","d":"QFS patients >10 years after infection; multi-omics vs CFS; cytokines","st":"active"},{"n":"Scripps Long COVID Wearable Device Study","u":"","ty":"cohort","c":"US","d":"Target 100,500 with wearables","st":"active"},{"n":"Spanish ME/CFS cohort (Vall d'Hebron; Castro-Marrero / Alegre)","u":"","ty":"cohort","c":"Spain","d":"ME/CFS and post-COVID cohorts with endothelial/inflammation biomarkers, wrist temperature and light-exposure actigraphy","st":"active"},{"n":"LIINC (Long-term Impact of Infection with Novel Coronavirus, UCSF)","u":"https://liincstudy.ucsf.edu/","ty":"cohort","c":"US","d":"UCSF long COVID cohort and biorepository (Peluso, Henrich); tissue/viral persistence studies.","st":"active"},{"n":"UCSF Chronic Infections and Inflammation in ME/CFS observational study","u":"","ty":"cohort","c":"US","d":"Target 200","st":"active"},{"n":"UK birth cohorts (1958 NCDS, 1970 BCS, ALSPAC)","u":"","ty":"cohort","c":"UK","d":"Premorbid predictors of CFS; ALSPAC CFS at 13 and 16 y with childhood sleep and activity data","st":"active"},{"n":"Yale LISTEN study (Iwasaki, Krumholz)","u":"https://medicine.yale.edu/","ty":"cohort","c":"US","d":"Yale long COVID and post-vaccination syndrome cohort with immune profiling (MY-LC related).","st":"active"},{"n":"ZOE COVID Symptom Study and COVID Symptom Study Biobank","u":"","ty":"cohort","c":"UK","d":"App cohort with pre-infection daily symptom logs; biobank sub-cohort; papers to 2026","st":"active"},{"n":"IACFS/ME biennial research and clinical conference","u":"https://www.iacfsme.org/conferences/","ty":"conference","c":"Global","d":"IACFS/ME conference series; conference page lists past programmes (2016, 2020, 2021); no 2027 date announced.","st":"unknown"},{"n":"International ME Conference Week (IiMER: BRMEC colloquium, IIMEC conference, EMERG meeting, Young EMERG)","u":"https://www.investinme.org/meconferenceweek2027.shtml","ty":"conference","c":"UK","d":"Annual week of ME research events run by Invest in ME Research; 2027 = BRMEC16 + IIMEC19.","st":"active"},{"n":"International ME/CFS Conference (Charité Fatigue Centrum + ME/CFS Research Foundation), Berlin","u":"https://events.mecfs-research.org/en/events/conference_2026","ty":"conference","c":"Germany","d":"Annual hybrid scientific conference in Berlin (2025: 12-13 May; 2026: 7-8 May) plus German-language ME/CFS Symposium.","st":"active"},{"n":"International Long Covid Awareness Day (15 March)","u":"https://www.longcovidkids.org/","ty":"conference","c":"Global","d":"Annual long COVID awareness day on 15 March.","st":"active"},{"n":"Long COVID International Conference (4th edition)","u":"https://academicmedicaleducation.com/programs/4th-long-covid-international-conference-2026","ty":"conference","c":"France","d":"Hybrid clinical long COVID conference, Radisson Blu Nice, 12-13 Nov 2026.","st":"active"},{"n":"ME/CFS Symposium – Forschung in Deutschland (German-language)","u":"https://mecfs-research.org/en/news-events/","ty":"conference","c":"Germany","d":"German-language ME/CFS symposium held alongside the Berlin international conference (13 May 2025; 8 May 2026).","st":"active"},{"n":"NCNED 5th RID (Research, Innovation & Discovery) Conference","u":"https://www.s4me.info/threads/ncneds-5th-rid-research-innovation-discovery-conference-october-2027.52638/","ty":"conference","c":"Australia","d":"Griffith NCNED conference on ME/CFS, long COVID and Gulf War illness; 13-14 Oct 2027, Mantra on Salt Beach.","st":"planned"},{"n":"NIH ME/CFS research conferences/workshops","u":"https://www.ninds.nih.gov/","ty":"conference","c":"US","d":"NIH ME/CFS conferences (e.g. 2019 \"Accelerating Research on ME/CFS\"; 2023 roadmap webinars); none scheduled found.","st":"unknown"},{"n":"Community Symposium on the Molecular Basis of ME/CFS (Stanford/OMF)","u":"https://www.s4me.info/threads/community-symposium-on-the-molecular-basis-of-me-cfs-sept-11-2026-stanford-ron-davis.51966/","ty":"conference","c":"US","d":"Annual virtual symposium hosted by Stanford Genome Technology Center (2025: 5 Sep; 2026: 11 Sep).","st":"active"},{"n":"International PAIS conference (Lionhearted Science – United Against PAIS)","u":"https://whn-pais.org/","ty":"conference","c":"Netherlands","d":"PAIS (post-acute infection syndromes) conference, Amsterdam, 26-29 Aug 2026.","st":"active"},{"n":"PolyBio Symposium (spring and fall)","u":"https://polybio.org/spring-2026-symposium/","ty":"conference","c":"US","d":"Twice-yearly virtual symposium of PolyBio-funded research (Spring 2026: 22 May).","st":"active"},{"n":"PRIME International Symposium on ME/CFS","u":"https://www.actionforme.org.uk/register-for-the-prime-international-symposium/","ty":"conference","c":"UK","d":"Hybrid two-day PRIME symposium, John McIntyre Conference Centre, Edinburgh, 28-29 Sep 2026.","st":"active"},{"n":"Severe ME Understanding and Remembrance Day (8 August)","u":"https://25megroup.org/","ty":"conference","c":"Global","d":"Annual awareness day for severe ME on 8 August.","st":"active"},{"n":"Solve M.E. webinar series","u":"https://solvecfs.org/events/","ty":"conference","c":"US","d":"Regular research webinars (e.g. SIGNAL study webinar 10 Nov 2026).","st":"active"},{"n":"UK CMRC annual research conference","u":"https://www.actionforme.org.uk/","ty":"conference","c":"UK","d":"Annual UK ME/CFS research conference of the CMRC; no current date found.","st":"unknown"},{"n":"World ME Day (12 May)","u":"https://worldmealliance.org/","ty":"conference","c":"Global","d":"Annual awareness day on 12 May; ME Awareness Week and Millions Missing actions around it.","st":"active"},{"n":"atlas-mecfs (CelesteDiWind)","u":"https://github.com/CelesteDiWind","ty":"data_portal","c":"Spain","d":"Bibliometric topic map of ME/CFS literature 2010-26 (ES/EN).","st":"active"},{"n":"Bond/ALEC/Epistemonikos L.OVE long COVID RCT library","u":"https://app.iloveevidence.com/","ty":"data_portal","c":"Australia/Global","d":"Living library of long COVID RCTs (185 RCTs; appears paused since Jul 2025).","st":"unknown"},{"n":"ClinicalTrials.gov","u":"https://clinicaltrials.gov/","ty":"data_portal","c":"US","d":"US trial registry (API v2) — main source for site trials.json.","st":"active"},{"n":"DRKS – German Clinical Trials Register","u":"https://drks.de/","ty":"data_portal","c":"Germany","d":"German trial registry for ME/CFS and post-COVID trials.","st":"active"},{"n":"EPPI-Centre long COVID living map","u":"https://eppi.ioe.ac.uk/","ty":"data_portal","c":"UK","d":"NIHR-funded living map of long COVID research (6,730 records, v109 Jan 2025).","st":"unknown"},{"n":"EU Clinical Trials Information System (CTIS)","u":"https://euclinicaltrials.eu/","ty":"data_portal","c":"EU","d":"EU trial register under the Clinical Trials Regulation.","st":"active"},{"n":"hanneseh Research Summaries","u":"https://github.com/hanneseh","ty":"data_portal","c":"Global","d":"CC0 living topic threads on ME/CFS and long COVID research.","st":"active"},{"n":"Health Rising (Cort Johnson)","u":"https://www.healthrising.org/","ty":"data_portal","c":"US","d":"Blog and forums covering ME/CFS, FM and long COVID research.","st":"active"},{"n":"ISRCTN registry","u":"https://www.isrctn.com/","ty":"data_portal","c":"UK","d":"UK-based trial registry (22 trials in trials.json).","st":"active"},{"n":"jbkze ME/CFS Research Watch","u":"","ty":"data_portal","c":"Germany","d":"Automated daily watch of German ME/CFS drug trials and papers (JSON/Atom).","st":"active"},{"n":"Long Covid Studies (longcovidstudies.net)","u":"https://longcovidstudies.net/","ty":"data_portal","c":"US","d":"Patient-readable live long COVID trial finder built on the ClinicalTrials.gov API.","st":"active"},{"n":"mapMECFS","u":"https://www.mapmecfs.org/","ty":"data_portal","c":"US","d":"RTI data portal for NIH ME/CFS Research Network datasets (119 datasets; API with login).","st":"active"},{"n":"McMaster long COVID living network meta-analysis (BMJ 2024)","u":"https://www.bmj.com/","ty":"data_portal","c":"Canada","d":"Living NMA of long COVID interventions (24 RCTs to Dec 2023); updates probably lapsed.","st":"unknown"},{"n":"ME Association weekly research round-up","u":"https://meassociation.org.uk/","ty":"data_portal","c":"UK","d":"Weekly summary of new ME/CFS research papers.","st":"active"},{"n":"ME/CFS Research Register (MRR)","u":"https://mrr.mecfs-research.org/","ty":"data_portal","c":"Germany/EU","d":"Curated register of ME/CFS projects, networks, publications, groups and orgs in DE/AT/CH/NL/NO/IS.","st":"active"},{"n":"ME/CFS Research Review (mecfs-research-review.org)","u":"","ty":"data_portal","c":"Global","d":"Site unreachable (no connection)","st":"active"},{"n":"ME/CFS Science","u":"https://mecfsscience.org/","ty":"data_portal","c":"Global","d":"Volunteer-written critical overviews of ME/CFS research.","st":"active"},{"n":"MECFSnet newsletter (RTI / NIH network)","u":"https://www.mecfsnet.org/","ty":"data_portal","c":"US","d":"Newsletter of the NIH ME/CFS Research Network.","st":"active"},{"n":"MEpedia","u":"https://me-pedia.org/","ty":"data_portal","c":"Global","d":"Crowd-sourced ME/CFS encyclopaedia (#MEAction).","st":"active"},{"n":"ME Research UK research database","u":"https://www.meresearch.org.uk/","ty":"data_portal","c":"UK","d":"Database of ME/CFS research publications (frozen at 2017 per landscape).","st":"ended"},{"n":"Monarch Initiative dismech","u":"https://github.com/monarch-initiative/dismech","ty":"data_portal","c":"Global","d":"AI-curated, ontology-backed disease mechanism knowledge base; ME/CFS pathograph under review.","st":"active"},{"n":"NINDS ME/CFS Common Data Elements","u":"https://www.commondataelements.ninds.nih.gov/Myalgic%20Encephalomyelitis/Chronic%20Fatigue%20Syndrome","ty":"data_portal","c":"US","d":"NINDS/CDC common data elements for ME/CFS studies (core v2).","st":"active"},{"n":"Open ME/CFS","u":"https://openmecfs.org/","ty":"data_portal","c":"Global","d":"Patient-led AI paper library, mechanism atlas and treatment pages.","st":"active"},{"n":"RECOVER data on NHLBI BioData Catalyst (PIC-SURE)","u":"https://biodatacatalyst.nhlbi.nih.gov/","ty":"data_portal","c":"US","d":"Controlled-access RECOVER cohort data (14,600+ adults, 200k+ variables).","st":"active"},{"n":"Science for ME (S4ME) forum","u":"https://www.s4me.info/","ty":"data_portal","c":"Global","d":"Patient/carer-run forum critiquing ME/CFS and long COVID research; weekly news in brief.","st":"active"},{"n":"Solve M.E. clinical trials finder","u":"https://solvecfs.org/","ty":"data_portal","c":"US","d":"Solve M.E. list of recruiting US trials for ME/CFS, long COVID and related conditions.","st":"active"},{"n":"Visible app (patient-founded pacing platform)","u":"https://www.makevisible.com/","ty":"data_portal","c":"UK/Global","d":"HRV/heart rate, symptom and crash logs; in-house analyses and external collaborations","st":"active"},{"n":"Wikipedia ME/CFS article","u":"https://en.wikipedia.org/wiki/Myalgic_encephalomyelitis/chronic_fatigue_syndrome","ty":"data_portal","c":"Global","d":"Volunteer-edited encyclopaedia article.","st":"active"},{"n":"Action for ME","u":"https://www.actionforme.org.uk/","ty":"funder","c":"UK","d":"UK charity; DecodeME and PRIME partner; organises PRIME International Symposium.","st":"active"},{"n":"Amar Foundation","u":"","ty":"funder","c":"Unknown","d":"Listed as a potential funder in funding.json; no web presence found.","st":"unknown"},{"n":"AMED – Japan Agency for Medical Research and Development","u":"https://www.amed.go.jp/en/","ty":"funder","c":"Japan","d":"Japanese medical research funder; has funded ME/CFS research at NCNP.","st":"active"},{"n":"Anthropic (AI for Science; guest investigators)","u":"https://www.anthropic.com/news/ai-for-science-program","ty":"funder","c":"US","d":"AI company offering API credits and a guest-investigator call for life-science researchers (in-kind).","st":"active"},{"n":"ANZMES (Associated New Zealand ME Society)","u":"https://anzmes.org.nz/","ty":"funder","c":"New Zealand","d":"NZ national ME/CFS organisation; research funding with Massey University.","st":"active"},{"n":"ARPA-H","u":"https://arpa-h.gov/","ty":"funder","c":"US","d":"US advanced research agency; no ME/CFS-specific programme found.","st":"active"},{"n":"Balvi","u":"https://balvi.io/","ty":"funder","c":"Global","d":"Philanthropic fund (Vitalik Buterin) that funded PLRC and long COVID projects.","st":"active"},{"n":"BMFTR – Federal Ministry of Research, Technology and Space (Germany)","u":"https://www.bmftr.bund.de/","ty":"funder","c":"Germany","d":"German research ministry (formerly BMBF); funds ME/CFS consortia and the National Decade.","st":"active"},{"n":"CDC ME/CFS programme (Division of High-Consequence Pathogens and Pathology)","u":"https://www.cdc.gov/me-cfs/","ty":"funder","c":"US","d":"CDC public-health programme for ME/CFS: MCAM cohort, clinician education, stakeholder calls.","st":"active"},{"n":"Chan Zuckerberg Initiative (CZI)","u":"https://chanzuckerberg.com/science/","ty":"funder","c":"US","d":"Philanthropy funding open science; no ME/CFS programme.","st":"active"},{"n":"Canadian Institutes of Health Research (CIHR)","u":"https://cihr-irsc.gc.ca/","ty":"funder","c":"Canada","d":"Canadian federal health research funder; funded ICanCME and Long COVID Web.","st":"active"},{"n":"Steven & Alexandra Cohen Foundation","u":"https://www.cohenfdn.org/","ty":"funder","c":"US","d":"Philanthropy funding Lyme disease and tick-borne/long COVID research.","st":"active"},{"n":"Chief Scientist Office (Scotland)","u":"https://www.cso.scot.nhs.uk/","ty":"funder","c":"UK","d":"Scottish government health research funder; co-badges NIHR calls.","st":"active"},{"n":"Deutsche Forschungsgemeinschaft (DFG)","u":"https://www.dfg.de/","ty":"funder","c":"Germany","d":"German research foundation; general responsive grants, no ME/CFS programme.","st":"active"},{"n":"Deutsche Gesellschaft für ME/CFS","u":"https://www.mecfs.de/","ty":"funder","c":"Germany","d":"German ME/CFS patient society; advocacy and a small-grant #MECFS research programme.","st":"active"},{"n":"DoD CDMRP Peer Reviewed Medical Research Program (ME/CFS topic area)","u":"https://cdmrp.health.mil/prmrp/default","ty":"funder","c":"US","d":"Congressionally directed programme; ME/CFS has been an eligible topic area in several fiscal years.","st":"active"},{"n":"Emerge Australia","u":"https://www.emerge.org.au/","ty":"funder","c":"Australia","d":"Australian ME/CFS patient organisation; runs AusME Registry & Biobank and research partnerships.","st":"active"},{"n":"Emergent Ventures (Mercatus Center)","u":"https://www.mercatus.org/emergent-ventures","ty":"funder","c":"US","d":"Fast small grants to individuals.","st":"active"},{"n":"European Commission – Horizon Europe (Cluster 1 Health)","u":"https://ec.europa.eu/info/funding-tenders/opportunities/portal/","ty":"funder","c":"EU","d":"EU framework programme; 2026 and 2027 calls on post-infection chronic conditions; funds DISCOVER-ME.","st":"active"},{"n":"FWF – Austrian Science Fund","u":"https://www.fwf.ac.at/","ty":"funder","c":"Austria","d":"Austrian national research funder; co-runs the WE&ME Award.","st":"active"},{"n":"Health Research Board (HRB)","u":"https://www.hrb.ie/","ty":"funder","c":"Ireland","d":"Irish national health research funder; no ME/CFS programme found.","st":"active"},{"n":"Innovate UK (UKRI)","u":"https://www.ukri.org/councils/innovate-uk/","ty":"funder","c":"UK","d":"UK innovation agency; industry-led grants (Biomedical Catalyst, Smart).","st":"active"},{"n":"Invest in ME Research (IiMER)","u":"https://www.investinme.org/","ty":"funder","c":"UK","d":"UK charity funding biomedical research and running International ME Conference Week (BRMEC/IIMEC); EMERG partner.","st":"active"},{"n":"Long COVID Research Fund (Dysautonomia International)","u":"https://www.longcovidresearchfund.org/","ty":"funder","c":"US","d":"Patient-run fund for biomedical long COVID research.","st":"active"},{"n":"Lost Voices Stiftung","u":"https://lost-voices-stiftung.org/","ty":"funder","c":"Germany","d":"German foundation for ME/CFS; supports Charité ME/CFS conference and research.","st":"active"},{"n":"Mason Foundation (Equity Trustees)","u":"https://www.eqt.com.au/our-services/community/grant-funding/medical-grants/mason-national-medical-program","ty":"funder","c":"Australia","d":"Australian trust funding ME/CFS research via the National Medical Program.","st":"active"},{"n":"ME Association (Ramsay Research Fund)","u":"https://meassociation.org.uk/","ty":"funder","c":"UK","d":"UK patient charity; Ramsay Research Fund; co-funds UK ME/CFS Biobank.","st":"active"},{"n":"ME Research UK","u":"https://www.meresearch.org.uk/","ty":"funder","c":"UK","d":"Scottish charity funding biomedical ME/CFS research; annual grant call.","st":"active"},{"n":"ME/CFS Research Foundation","u":"https://mecfs-research.org/","ty":"funder","c":"Germany","d":"Hamburg foundation funding ME/CFS research, running the ME/CFS Research Register and co-hosting the International ME/CFS Conference.","st":"active"},{"n":"Medical Research Future Fund (MRFF)","u":"https://www.health.gov.au/our-work/medical-research-future-fund","ty":"funder","c":"Australia","d":"Australian government fund; ME/CFS round (2019) and post-acute sequelae of COVID-19 rounds.","st":"active"},{"n":"National Health and Medical Research Council (NHMRC)","u":"https://www.nhmrc.gov.au/","ty":"funder","c":"Australia","d":"Australian national funder; administers MRFF grant rounds.","st":"active"},{"n":"National Institutes of Health (NIH)","u":"https://www.nih.gov/","ty":"funder","c":"US","d":"Largest ME/CFS and long COVID public funder (extramural grants, CRCs, RECOVER, intramural study).","st":"active"},{"n":"National Institute for Health and Care Research (NIHR)","u":"https://www.nihr.ac.uk/","ty":"funder","c":"UK","d":"English health research funder; co-funded DecodeME, HERITAGE, STIMULATE-ICP.","st":"active"},{"n":"NINDS (NIH lead institute for ME/CFS)","u":"https://www.ninds.nih.gov/","ty":"funder","c":"US","d":"Leads the Trans-NIH ME/CFS Working Group and the ME/CFS Research Roadmap.","st":"active"},{"n":"Open Medicine Foundation (OMF)","u":"https://www.omf.ngo/","ty":"funder","c":"US/Canada","d":"Nonprofit funding collaborative ME/CFS and long COVID research centres (Stanford, Harvard, Uppsala, Montreal, Melbourne).","st":"active"},{"n":"Open Philanthropy","u":"https://www.openphilanthropy.org/","ty":"funder","c":"US","d":"Philanthropy (reportedly renamed); no ME/CFS or long COVID RFP found.","st":"active"},{"n":"Patient-Led Research Collaborative (PLRC)","u":"https://patientresearchcovid19.com/","ty":"funder","c":"Global","d":"Patient-led long COVID research group; Patient-Led Research Fund, PLRC Registry, trial-design advice.","st":"active"},{"n":"PolyBio Research Foundation","u":"https://polybio.org/","ty":"funder","c":"US","d":"Funds and coordinates persistent-pathogen research in long COVID, ME/CFS and related illness; LCRC, VIPER diagnostics, symposia.","st":"active"},{"n":"Research Council of Norway","u":"https://www.forskningsradet.no/","ty":"funder","c":"Norway","d":"Norwegian national research funder; no ME/CFS-specific call found.","st":"active"},{"n":"Schmidt Initiative for Long Covid (SILC)","u":"https://silc.org/","ty":"funder","c":"US","d":"Eric and Wendy Schmidt-funded long COVID research initiative.","st":"active"},{"n":"Simmaron Research Foundation","u":"https://www.simmaron.com/","ty":"funder","c":"US","d":"ME/CFS research nonprofit with biobank; collaborates rather than running open calls.","st":"active"},{"n":"Solve M.E. (Solve ME/CFS Initiative)","u":"https://solvecfs.org/","ty":"funder","c":"US","d":"US research and advocacy nonprofit; Ramsay grants, Catalyst Awards, You+ME/Solve Together registry, unhide.","st":"active"},{"n":"Swiss National Science Foundation (SNSF)","u":"https://www.snf.ch/en","ty":"funder","c":"Switzerland","d":"Swiss national research funder; general schemes only.","st":"active"},{"n":"Medical Research Council (MRC, UKRI)","u":"https://www.ukri.org/councils/mrc/","ty":"funder","c":"UK","d":"Main UK public biomedical funder; ME/CFS highlight notice since 2003; co-funded DecodeME.","st":"active"},{"n":"Weidenhammer Zoebele Stiftung","u":"https://mecfs-research.org/","ty":"funder","c":"Germany","d":"German foundation supporting Charité ME/CFS work; cited as conference sponsor on the International ME/CFS Conference page.","st":"active"},{"n":"Wellcome","u":"https://wellcome.org/","ty":"funder","c":"UK","d":"Global charitable research funder; Discovery Awards open to ME/CFS work.","st":"active"},{"n":"Wellcome Leap","u":"https://wellcomeleap.org/","ty":"funder","c":"US/UK","d":"Health-research nonprofit running programme-style challenges; no ME/CFS programme found.","st":"active"},{"n":"WE&ME Foundation","u":"https://www.weandme.org/","ty":"funder","c":"Austria","d":"Austrian foundation funding ME/CFS research (Research Project call, Emerging Leader Award, FWF and WWTF partnerships).","st":"active"},{"n":"WWTF – Vienna Science and Technology Fund","u":"https://www.wwtf.at/","ty":"funder","c":"Austria","d":"Vienna funder; ran ME/CFS calls in 2026 (fellowships, consolidation).","st":"active"},{"n":"ZonMw","u":"https://www.zonmw.nl/","ty":"funder","c":"Netherlands","d":"Dutch health research funder running the ME/CVS research programme 2021-2031.","st":"active"},{"n":"Austrian action plan on post-acute infection syndromes (Aktionsplan PAIS)","u":"","ty":"government_plan","c":"Austria","d":"Austrian Ministry of Health action plan for PAIS incl. ME/CFS and long COVID; created a national reference centre.","st":"active"},{"n":"Australian ME/CFS clinical guideline (Emerge Australia, NHMRC-approved process)","u":"https://www.emerge.org.au/","ty":"government_plan","c":"Australia","d":"New Australian ME/CFS clinical guideline being developed after the 2019 NHMRC report.","st":"planned"},{"n":"NHMRC ME/CFS Advisory Committee report (2019)","u":"https://www.nhmrc.gov.au/research-policy/research-priorities/myalgic-encephalomyelitis-and-chronic-fatigue-syndrome","ty":"government_plan","c":"Australia","d":"Advisory committee report leading to AUD 3.1M MRFF ME/CFS grant round; recommended new clinical guideline.","st":"ended"},{"n":"BMG Initiative Long COVID (Germany)","u":"https://www.bmg-longcovid.de/","ty":"government_plan","c":"Germany","d":"Federal Ministry of Health information and care initiative for long COVID and ME/CFS.","st":"active"},{"n":"G-BA Long-COVID-Richtlinie (LongCOV-RL)","u":"https://www.g-ba.de/richtlinien/136/","ty":"government_plan","c":"Germany","d":"Federal Joint Committee directive on coordinated care for long COVID and related illnesses incl. ME/CFS.","st":"active"},{"n":"Nationale Dekade gegen postinfektiöse Erkrankungen (BMFTR)","u":"https://www.bmftr.bund.de/DE/Forschung/Gesundheit/MedizinischeForschung/Postinfekti%C3%B6seErkrankungen/postinfekti%C3%B6seerkrankungen_node.html","ty":"government_plan","c":"Germany","d":"German federal ten-year research programme on post-infectious diseases incl. ME/CFS and long COVID; first funding guideline 2026.","st":"active"},{"n":"European Parliament resolution on ME research funding (2020)","u":"https://www.europarl.europa.eu/doceo/document/TA-9-2020-0140_EN.html","ty":"government_plan","c":"EU","d":"Resolution of 18 June 2020 calling for more EU biomedical ME/CFS research funding.","st":"ended"},{"n":"HSE ME/CFS model of care (Ireland)","u":"https://www.hse.ie/","ty":"government_plan","c":"Ireland","d":"Irish health service model of care for ME/CFS reported as in development; no public page confirmed.","st":"planned"},{"n":"NICE/SIGN/RCGP guideline NG188: long-term effects of COVID-19","u":"https://www.nice.org.uk/guidance/ng188","ty":"government_plan","c":"UK","d":"Rapid guideline on identifying, assessing and managing post-COVID-19 syndrome.","st":"active"},{"n":"NICE guideline NG206: ME/CFS diagnosis and management","u":"https://www.nice.org.uk/guidance/ng206","ty":"government_plan","c":"UK","d":"England/Wales clinical guideline; removed GET and CBT as cures; PEM central to diagnosis.","st":"active"},{"n":"NIH ME/CFS Research Roadmap (2024)","u":"","ty":"government_plan","c":"US","d":"NIH-wide research priorities for ME/CFS produced by an NINDS-led working group of Council, published 2024.","st":"active"},{"n":"Health Council of the Netherlands advisory report on ME/CVS (2018)","u":"https://www.gezondheidsraad.nl/documenten/adviezen/2018/03/19/me-cvs","ty":"government_plan","c":"Netherlands","d":"Advisory report that recommended a biomedical ME/CVS research programme (became ZonMw programme).","st":"ended"},{"n":"Norwegian Directorate of Health CFS/ME national guidance","u":"https://www.helsedirektoratet.no/veiledere/cfs-me","ty":"government_plan","c":"Norway","d":"National clinical guidance for CFS/ME in Norway.","st":"active"},{"n":"DHSC ME/CFS: the final delivery plan","u":"https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan","ty":"government_plan","c":"UK","d":"UK government cross-departmental plan for ME/CFS research, care, attitudes and living with ME/CFS.","st":"active"},{"n":"IOM (National Academies) report: Beyond ME/CFS – Redefining an Illness (2015)","u":"https://nap.nationalacademies.org/catalog/19012/beyond-myalgic-encephalomyelitischronic-fatigue-syndrome-redefining-an-illness","ty":"government_plan","c":"US","d":"Proposed SEID criteria with PEM as required symptom; widely used diagnostic reference.","st":"ended"},{"n":"NASEM 2024 Long COVID definition","u":"https://nap.nationalacademies.org/catalog/27768/a-long-covid-definition-a-chronic-systemic-disease-state-with-profound-consequences","ty":"government_plan","c":"US","d":"Consensus definition of long COVID as an infection-associated chronic condition.","st":"active"},{"n":"WHO clinical case definition of post COVID-19 condition (Delphi, 2021)","u":"https://www.who.int/publications/i/item/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1","ty":"government_plan","c":"Global","d":"WHO consensus case definition for post COVID-19 condition.","st":"active"},{"n":"AIM ImmunoTech (rintatolimod / Ampligen)","u":"https://aimimmuno.com/","ty":"industry_sponsor","c":"US","d":"Developer of rintatolimod (Ampligen), the only ME/CFS drug with late-phase trials; long COVID trial.","st":"active"},{"n":"Laboratorios Viñas","u":"https://www.vinas.es/","ty":"industry_sponsor","c":"Spain","d":"Spanish company sponsoring ME/CFS supplement trials with Vall d'Hebron.","st":"active"},{"n":"Terra Biological","u":"https://terrabiological.com/","ty":"industry_sponsor","c":"US","d":"Company sponsoring 3 long COVID trials in trials.json.","st":"active"},{"n":"BioSig-PEM consortium (BMFTR)","u":"https://www.gesundheitsforschung-bmftr.de/de/biosig-pem-identifizierung-biopathologischer-signaturen-von-post-exertional-malaise-bei-me-18111.php","ty":"initiative","c":"Germany","d":"BMFTR-funded consortium identifying biopathological signatures of PEM using tissue samples (start 2027).","st":"planned"},{"n":"DISCOVER-ME (EU Horizon)","u":"https://www.investinme.org/horizon2026.shtml","ty":"initiative","c":"EU","d":"EU Horizon project (~EUR 7.5M) led by Medical University of Vienna with Quadram Institute and EMERG; kicked off Sep 2026.","st":"active"},{"n":"HERITAGE (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE)","u":"https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan","ty":"initiative","c":"UK","d":"GBP 1.4M NIHR programme on cost-effectiveness of existing care models for ME/CFS and long COVID.","st":"active"},{"n":"NIH RECOVER (Researching COVID to Enhance Recovery)","u":"https://recovercovid.org/","ty":"initiative","c":"US","d":"NIH long COVID programme: adult/paediatric cohorts, EHR, autopsy, and RECOVER-TLC trials.","st":"active"},{"n":"Pagliuca / Massachusetts long COVID treatment effort (with PolyBio)","u":"https://polybio.org/","ty":"initiative","c":"US","d":"Major donor and Massachusetts Governor effort to accelerate long COVID treatments, announced on PolyBio news 2026-09-25.","st":"active"},{"n":"PolyBio VIPER diagnostics","u":"https://polybio.org/","ty":"initiative","c":"US","d":"PolyBio programme for viral-persistence diagnostics.","st":"active"},{"n":"PRIME (Building Infrastructure for Patients, Researchers and Industry for Myalgic Encephalomyelitis)","u":"https://www.actionforme.org.uk/register-for-the-prime-international-symposium/","ty":"initiative","c":"UK","d":"MRC partnership award building permanent UK ME/CFS research infrastructure on DecodeME; runs workshops and an international symposium.","st":"active"},{"n":"SequenceME (with Long COVID phase 2)","u":"https://www.s4me.info/threads/webinar-sequenceme-long-covid-phase-2-funding-may-26-2026-02-30-pm-uk.50170/","ty":"initiative","c":"UK","d":"UK sequencing study of ME/CFS and long COVID; phase 2 funding announced May 2026 (details from S4ME post; own site not found).","st":"active"},{"n":"SIGNAL study (Solve M.E. home-based treatment study)","u":"https://solvecfs.org/events/","ty":"initiative","c":"US","d":"Solve M.E. study using home-based treatments to learn which ME/CFS and long COVID treatments work; webinar 10 Nov 2026.","st":"active"},{"n":"Solve Together / You + ME platform","u":"https://solvecfs.org/","ty":"initiative","c":"US","d":"Solve M.E. real-world data platform (successor to You + ME Registry).","st":"active"},{"n":"TREATME patient treatment survey (Stanford, Davis lab)","u":"https://www.pnas.org/","ty":"initiative","c":"US","d":"Survey of 3,925 patients rating 150+ treatments for ME/CFS and long COVID (PNAS 2025).","st":"ended"},{"n":"BMC Medical Genomics collection: Genomic characterization of ME/CFS","u":"https://link.springer.com/collections/hcbedeihee","ty":"journal","c":"Global","d":"Open call for papers; closes 19 Mar 2027.","st":"active"},{"n":"Fatigue: Biomedicine, Health & Behavior","u":"https://www.tandfonline.com/journals/rftg20","ty":"journal","c":"Global","d":"Official journal of IACFS/ME (Taylor & Francis).","st":"active"},{"n":"Frontiers / MDPI ME/CFS research topics and special issues","u":"https://www.frontiersin.org/","ty":"journal","c":"Global","d":"Recurring ME/CFS and long COVID special collections (e.g. Frontiers in Neurology, Medicina).","st":"active"},{"n":"Journal of Chronic Fatigue Syndrome (ceased)","u":"https://www.tandfonline.com/","ty":"journal","c":"Global","d":"Former dedicated CFS journal (Haworth/Taylor & Francis), ceased 2008.","st":"ended"},{"n":"Hypothesis (PLRC publication)","u":"https://patientresearchcovid19.com/","ty":"journal","c":"Global","d":"PLRC-associated publication venue for patient-led hypotheses (per landscape).","st":"active"},{"n":"25% ME Group","u":"https://25megroup.org/","ty":"patient_org","c":"UK","d":"UK charity for people with severe ME.","st":"active"},{"n":"Action CIND","u":"https://www.actioncind.org/","ty":"patient_org","c":"Canada","d":"Canadian group for chronic infection-associated neuroimmune diseases.","st":"active"},{"n":"Body Politic","u":"https://www.wearebodypolitic.com/","ty":"patient_org","c":"US","d":"Long COVID and disability justice collective that co-founded PLRC.","st":"active"},{"n":"CFS Associazione Italiana","u":"https://www.associazionecfs.it/","ty":"patient_org","c":"Italy","d":"Italian CFS/ME patient association.","st":"active"},{"n":"Doctors with M.E.","u":"https://doctorswith.me/","ty":"patient_org","c":"UK","d":"Group of medical professionals with ME advocating for biomedical approaches.","st":"active"},{"n":"Dysautonomia International","u":"https://www.dysautonomiainternational.org/","ty":"patient_org","c":"US","d":"Autonomic disorders charity running the Long COVID Research Fund.","st":"active"},{"n":"European ME Alliance (EMEA)","u":"https://www.europeanmealliance.org/","ty":"patient_org","c":"EU","d":"Alliance of European national ME organisations, linked to IiMER.","st":"active"},{"n":"European ME Coalition (EMEC)","u":"https://www.europeanmecoalition.com/","ty":"patient_org","c":"EU","d":"Coalition of European patient organisations advocating at EU level.","st":"active"},{"n":"Fatigatio e.V.","u":"https://www.fatigatio.de/","ty":"patient_org","c":"Germany","d":"German ME/CFS patient association.","st":"active"},{"n":"Forward ME","u":"https://forward-me.org.uk/","ty":"patient_org","c":"UK","d":"Alliance of UK ME charities engaging parliament.","st":"active"},{"n":"Irish ME/CFS Association","u":"https://www.mecfs.ie/","ty":"patient_org","c":"Ireland","d":"National Irish ME/CFS patient organisation.","st":"active"},{"n":"Japan ME Association (筋痛性脳脊髄炎の会)","u":"https://mecfsj.wordpress.com/","ty":"patient_org","c":"Japan","d":"Japanese ME patient organisation.","st":"active"},{"n":"Long COVID Deutschland","u":"https://longcoviddeutschland.org/","ty":"patient_org","c":"Germany","d":"German long COVID patient initiative.","st":"active"},{"n":"Long Covid Europe","u":"https://longcovideurope.org/","ty":"patient_org","c":"EU","d":"Network of European long COVID patient associations.","st":"active"},{"n":"Long Covid Kids","u":"https://www.longcovidkids.org/","ty":"patient_org","c":"UK","d":"Charity for children and young people with long COVID; Long Covid Awareness Day.","st":"active"},{"n":"Long Covid Schweiz","u":"https://long-covid-info.ch/","ty":"patient_org","c":"Switzerland","d":"Swiss long COVID patient association.","st":"active"},{"n":"Long Covid SOS","u":"https://www.longcovidsos.org/","ty":"patient_org","c":"UK","d":"UK long COVID patient advocacy group.","st":"active"},{"n":"Long Covid Support","u":"https://www.longcovid.org/","ty":"patient_org","c":"UK","d":"Peer support and advocacy charity for long COVID.","st":"active"},{"n":"Massachusetts ME/CFS & FM Association","u":"https://www.massmecfs.org/","ty":"patient_org","c":"US","d":"State patient association for ME/CFS and fibromyalgia.","st":"active"},{"n":"ME Advocates Ireland (MEAI)","u":"https://www.meadvocatesireland.ie/","ty":"patient_org","c":"Ireland","d":"Irish advocacy group for ME services and research.","st":"active"},{"n":"ME/cvs Vereniging","u":"https://me-cvsvereniging.nl/","ty":"patient_org","c":"Netherlands","d":"Dutch ME/CVS patient association.","st":"active"},{"n":"Norges ME-forening","u":"https://www.me-foreningen.no/","ty":"patient_org","c":"Norway","d":"Norwegian ME association; patient support and research funding/advocacy.","st":"active"},{"n":"#MEAction","u":"https://www.meaction.net/","ty":"patient_org","c":"Global/US","d":"International ME advocacy network; runs MEpedia and Millions Missing.","st":"active"},{"n":"ME/CFS Australia / national alliance","u":"https://mecfs.org.au/","ty":"patient_org","c":"Australia","d":"Australian ME/CFS patient organisation (state-based).","st":"active"},{"n":"ME/CFS Foreningen (Denmark)","u":"https://me-cfs.dk/","ty":"patient_org","c":"Denmark","d":"Danish ME/CFS patient association.","st":"active"},{"n":"Millions Missing Canada","u":"https://millionsmissing.ca/","ty":"patient_org","c":"Canada","d":"Canadian ME advocacy group.","st":"active"},{"n":"#NichtGenesen","u":"https://nichtgenesen.org/","ty":"patient_org","c":"Germany","d":"German campaign for long COVID, ME/CFS and post-vaccine syndrome patients.","st":"active"},{"n":"Österreichische Gesellschaft für ME/CFS","u":"https://www.mecfs.at/","ty":"patient_org","c":"Austria","d":"Austrian ME/CFS society.","st":"active"},{"n":"Physios for ME","u":"https://www.physiosforme.com/","ty":"patient_org","c":"UK","d":"Physiotherapists promoting safe ME/CFS rehabilitation practice.","st":"active"},{"n":"Riksföreningen för ME-patienter (RME)","u":"https://www.rme.nu/","ty":"patient_org","c":"Sweden","d":"Swedish national ME patient association.","st":"active"},{"n":"Schweizerische Gesellschaft für ME & CFS (SGME)","u":"https://sgme.ch/","ty":"patient_org","c":"Switzerland","d":"Swiss ME/CFS patient society.","st":"active"},{"n":"Steungroep ME en Arbeidsongeschiktheid","u":"https://www.steungroep.nl/","ty":"patient_org","c":"Netherlands","d":"Dutch ME patient support group (work/disability).","st":"active"},{"n":"Suomen ME/CFS-yhdistys (Finland)","u":"https://www.me-cfs.fi/","ty":"patient_org","c":"Finland","d":"Finnish ME/CFS patient association.","st":"active"},{"n":"The Young ME Sufferers Trust (Tymes Trust)","u":"https://www.tymestrust.org/","ty":"patient_org","c":"UK","d":"UK charity for children and young people with ME.","st":"active"},{"n":"Verein ME/CFS Schweiz","u":"https://verein-mecfs.ch/","ty":"patient_org","c":"Switzerland","d":"Swiss ME/CFS patient association.","st":"active"},{"n":"World ME Alliance","u":"https://worldmealliance.org/","ty":"patient_org","c":"Global","d":"Global alliance of national ME organisations; World ME Day 12 May.","st":"active"},{"n":"AusME Registry & Biobank (Emerge Australia; Mason Foundation funded; formerly You+ME Australia)","u":"https://ausmeregistry.org/","ty":"registry","c":"Australia","d":"2,718 participants, 2,179 ME/CFS (plus long COVID and healthy), age 12+; 30 projects; optional blood; 3- or 12-monthly study visits","st":"active"},{"n":"BC Women's Complex Chronic Diseases Program Data Registry","u":"","ty":"registry","c":"Canada","d":"Target 1,300 clinic patients (ME/CFS, fibromyalgia, Lyme-like)","st":"active"},{"n":"Clalit Health Services (Israel)","u":"","ty":"registry","c":"Israel","d":"clalitresearch.org unreachable","st":"active"},{"n":"CPRD (Clinical Practice Research Datalink) with HES linkage","u":"","ty":"registry","c":"UK","d":"6,710 adult + 916 child ME/CFS cases with GP tests, consultations and symptoms from 15 y (adults) / 10 y (children) before diagnosis; incidence trends","st":"active"},{"n":"Danish national registries (patient, prescription)","u":"","ty":"registry","c":"Denmark","d":"HPV-vaccine and autonomic/fatigue syndrome studies; G93.3 coding","st":"active"},{"n":"Kaiser Permanente integrated EHR","u":"","ty":"registry","c":"US","d":"ME/CFS classification accuracy study in integrated care","st":"active"},{"n":"Korea HIRA national claims","u":"","ty":"registry","c":"South Korea","d":"All CFS diagnoses 2010-2020, incidence 44.7/100,000/yr","st":"active"},{"n":"Maccabi Healthcare Services EHR (Israel)","u":"","ty":"registry","c":"Israel","d":"1,913,234 PCR-tested members; 70 long-COVID outcomes at 1 year","st":"active"},{"n":"German Multicenter ME/CFS Registry (MECFS-R, TUM Munich / Charité)","u":"","ty":"registry","c":"Germany","d":"Pilot 174 (43 paediatric), median Bell 30; target 650; viral trigger 92%","st":"active"},{"n":"Munich Long COVID Registry (MLC-R) and PAIS-ME/CFS healthy control study (TUM)","u":"","ty":"registry","c":"Germany","d":"Children, adolescents, adults post-COVID; target 1,000; separate healthy control population study (n=200, 2024)","st":"active"},{"n":"N3C Long COVID Tenant (NCATS)","u":"https://ncats.nih.gov/research/research-activities/n3c","ty":"registry","c":"US","d":"Largest open US EHR for COVID/long COVID; 6.5M adults analysed for PASC vs ME/CFS computable phenotypes; includes lab values","st":"active"},{"n":"NCNED registry and biobank (Griffith University)","u":"","ty":"registry","c":"Australia","d":"National registry of ME/CFS and non-fatigued controls, questionnaire data 2014-Feb 2026; NK/TRPM3 immunology and 7T MRI cohorts","st":"active"},{"n":"Norwegian Patient Registry (G93.3) and linked national registers","u":"","ty":"registry","c":"Norway","d":"Nationwide ME/CFS diagnoses; bimodal incidence; SES determinants; HPV vaccine studies","st":"active"},{"n":"New Zealand Integrated Data Infrastructure","u":"","ty":"registry","c":"New Zealand","d":"1,902 working-age benefit recipients with ME/CFS; health, labour, social outcomes","st":"active"},{"n":"OpenSAFELY","u":"","ty":"registry","c":"UK","d":"GP records for most of England; no ME/CFS publication found","st":"active"},{"n":"Swedish national registers and Swedish Twin Registry","u":"","ty":"registry","c":"Sweden","d":"Twin chronic fatigue epidemiology; family genetic risk scores; registry ME/CFS after COVID","st":"active"},{"n":"Taiwan National Health Insurance Research Database","u":"","ty":"registry","c":"Taiwan","d":"CFS after infection (395,811 infected matched), after pneumonia, after COVID (3.2M)","st":"active"},{"n":"Unhide (Brain Inflammation Collaborative)","u":"","ty":"registry","c":"US","d":"Digital lifestyle data, target 10,000","st":"active"},{"n":"You + ME Registry (Solve M.E.)","u":"","ty":"registry","c":"US","d":"Patient registry with symptom tracking and optional biosample linkage","st":"active"},{"n":"Aarhus University post-COVID research","u":"https://international.au.dk/","ty":"research_group","c":"Denmark","d":"Recurring Danish trial sponsor.","st":"active"},{"n":"Amsterdam UMC ME/CVS and long COVID research (muscle, exertion)","u":"https://www.amsterdamumc.org/","ty":"research_group","c":"Netherlands","d":"Muscle-biopsy exertion studies (Appelman 2024) and ZonMw ME/CVS projects.","st":"active"},{"n":"Baker Heart and Diabetes Institute long COVID programme","u":"https://baker.edu.au/","ty":"research_group","c":"Australia","d":"Australian institute funded for long COVID, POTS and ME/CFS impact research.","st":"active"},{"n":"Center for Solutions for ME/CFS (Columbia, Lipkin)","u":"","ty":"research_group","c":"US","d":"NIH-funded CRC at Columbia Mailman CII; microbiome, immune, metabolomic studies.","st":"active"},{"n":"Cornell ME/CFS Collaborative Research Center (Hanson)","u":"https://neuroimmune.cornell.edu/","ty":"research_group","c":"US","d":"NIH-funded CRC studying post-exertional malaise with 2-day CPET, metabolomics, EVs, single-cell.","st":"active"},{"n":"Chinese University of Hong Kong long COVID research","u":"https://www.cuhk.edu.hk/","ty":"research_group","c":"China (Hong Kong)","d":"Recurring sponsor of long COVID trials (incl. traditional Chinese medicine).","st":"active"},{"n":"Duke Clinical Research Institute (RECOVER-TLC / VITAL clinical coordinating centre)","u":"https://dcri.org/","ty":"research_group","c":"US","d":"Coordinating centre for RECOVER treatment trials (sponsor of record via Kanecia Zimmerman).","st":"active"},{"n":"University of Edinburgh MRC HGU (Ponting) – DecodeME genetics","u":"https://www.ed.ac.uk/","ty":"research_group","c":"UK","d":"DecodeME genetic analysis group; PRIME lead institution.","st":"active"},{"n":"Gazi University (Ankara) long COVID rehabilitation trials","u":"https://gazi.edu.tr/","ty":"research_group","c":"Turkey","d":"Turkish university with 5 long COVID rehabilitation trials in trials.json.","st":"active"},{"n":"National Centre for Neuroimmunology and Emerging Diseases (NCNED, Griffith)","u":"https://www.griffith.edu.au/research/national-centre-neuroimmunology-emerging-diseases","ty":"research_group","c":"Australia","d":"Griffith University centre studying TRPM3 ion-channel dysfunction in ME/CFS and long COVID; runs RID conference.","st":"active"},{"n":"Haukeland University Hospital ME/CFS research (Fluge, Mella)","u":"https://helse-bergen.no/","ty":"research_group","c":"Norway","d":"Bergen group running rituximab, cyclophosphamide and other ME/CFS trials and metabolic studies.","st":"active"},{"n":"Hong Kong Baptist University long COVID / CFS research","u":"https://www.hkbu.edu.hk/","ty":"research_group","c":"China (Hong Kong)","d":"Recurring sponsor of Chinese-medicine and mind-body trials.","st":"active"},{"n":"Jackson Laboratory ME/CFS CRC (Unutmaz, Oh)","u":"https://www.jax.org/research-and-faculty/research-labs/the-unutmaz-lab","ty":"research_group","c":"US","d":"NIH-funded CRC; immune and microbiome multi-omics (BioMapAI).","st":"active"},{"n":"Karolinska Institutet / University Hospital post-COVID and ME/CFS research","u":"https://ki.se/","ty":"research_group","c":"Sweden","d":"Recurring trials.json sponsor (post-COVID trials; Brodin immunogenetics).","st":"active"},{"n":"CureME (LSHTM)","u":"https://cureme.lshtm.ac.uk/","ty":"research_group","c":"UK","d":"LSHTM ME/CFS research group running the UK ME/CFS Biobank.","st":"active"},{"n":"Hannover Medical School (MHH) post-COVID research","u":"https://www.mhh.de/","ty":"research_group","c":"Germany","d":"Recurring sponsor of post-COVID trials in trials.json.","st":"active"},{"n":"Mount Sinai Cohen Center for Recovery from Complex Chronic Illness (CoRE)","u":"https://icahn.mssm.edu/research/core","ty":"research_group","c":"US","d":"Long COVID and IACC research and clinical programme (Putrino); top trials.json sponsor.","st":"active"},{"n":"NCNP ME/CFS research (Yamamura, Ono)","u":"https://www.ncnp.go.jp/","ty":"research_group","c":"Japan","d":"Japanese national centre studying autoantibodies and B cells in ME/CFS.","st":"active"},{"n":"Institute for Neuro-Immune Medicine (Nova Southeastern, Klimas)","u":"https://www.nova.edu/inim/index.html","ty":"research_group","c":"US","d":"Clinical research institute for ME/CFS, Gulf War illness and long COVID; exercise-challenge immune studies.","st":"active"},{"n":"NTNU / St Olavs Hospital ME/CFS and post-COVID research","u":"https://www.ntnu.edu/","ty":"research_group","c":"Norway","d":"Recurring Norwegian trial sponsor; HUNT cohort host.","st":"active"},{"n":"Oslo University Hospital / Akershus paediatric ME/CFS research (Wyller)","u":"https://www.oslo-universitetssykehus.no/","ty":"research_group","c":"Norway","d":"Adolescent CFS/ME studies (NorCAPITAL, CEBA EBV cohort).","st":"active"},{"n":"Quadram Institute (Norwich) ME/CFS microbiome group","u":"https://quadram.ac.uk/","ty":"research_group","c":"UK","d":"UK institute studying gut microbiome in ME/CFS; DISCOVER-ME partner, IiMER-funded.","st":"active"},{"n":"Radboud university medical center Q fever fatigue / ME/CVS research","u":"https://www.radboudumc.nl/","ty":"research_group","c":"Netherlands","d":"Q fever fatigue syndrome cohort and trials; ZonMw ME/CVS projects.","st":"active"},{"n":"RIKEN / Osaka City University ME/CFS neuroinflammation research","u":"https://www.riken.jp/en/","ty":"research_group","c":"Japan","d":"PET imaging of neuroinflammation and fatigue research (Watanabe).","st":"active"},{"n":"Rīga Stradiņš University ME/CFS research (Murovska)","u":"https://www.rsu.lv/en","ty":"research_group","c":"Latvia","d":"Latvian group studying herpesviruses in ME/CFS; EUROMENE and EMERG member.","st":"active"},{"n":"CHU Sainte-Justine ME/CFS research (Moreau) / ICanCME hub","u":"https://icancme.ca/","ty":"research_group","c":"Canada","d":"Montreal group studying PEM biomarkers; leads ICanCME.","st":"active"},{"n":"Stanford Genome Technology Center / ME/CFS Collaborative (Davis)","u":"https://med.stanford.edu/sgtc.html","ty":"research_group","c":"US","d":"OMF-funded ME/CFS research centre; hosts the annual Community Symposium on the Molecular Basis of ME/CFS.","st":"active"},{"n":"Stony Brook University long COVID research","u":"https://www.stonybrook.edu/","ty":"research_group","c":"US","d":"Recurring trial sponsor (5 trials in trials.json).","st":"active"},{"n":"University of Alabama at Birmingham ME/CFS and long COVID research","u":"https://www.uab.edu/","ty":"research_group","c":"US","d":"Recurring trial sponsor; UAB ME/CFS family cohort.","st":"active"},{"n":"University of Alberta long COVID research","u":"https://www.ualberta.ca/","ty":"research_group","c":"Canada","d":"Recurring sponsor (5 trials) of long COVID trials in trials.json.","st":"active"},{"n":"UEA / Norwich ME/CFS microbiome & infection group (Carding)","u":"https://www.uea.ac.uk/","ty":"research_group","c":"UK","d":"IiMER-funded gut microbiome ME/CFS research linked to Quadram.","st":"active"},{"n":"Universidad de Granada long COVID / ME/CFS rehabilitation trials","u":"https://www.ugr.es/","ty":"research_group","c":"Spain","d":"Recurring sponsor of rehabilitation and exercise-tolerance trials.","st":"active"},{"n":"Universität Duisburg-Essen / Universitätsmedizin Essen post-COVID trials","u":"https://www.uni-due.de/","ty":"research_group","c":"Germany","d":"Recurring sponsor of post-COVID trials.","st":"active"},{"n":"University of São Paulo long COVID research","u":"https://www5.usp.br/","ty":"research_group","c":"Brazil","d":"Recurring Brazilian long COVID trial sponsor (HCFMUSP).","st":"active"},{"n":"VA Office of Research and Development (long COVID / GWI)","u":"https://www.research.va.gov/","ty":"research_group","c":"US","d":"US Veterans Affairs research office; recurring long COVID trial sponsor; Million Veteran Program.","st":"active"},{"n":"Workwell Foundation","u":"https://workwellfoundation.org/","ty":"research_group","c":"US","d":"Exercise physiology group specialising in 2-day CPET for ME/CFS.","st":"active"},{"n":"COFFI – Collaborative on Fatigue Following Infection","u":"","ty":"research_network","c":"Global","d":"International collaboration pooling prospective post-infection fatigue cohorts.","st":"unknown"},{"n":"European ME Research Group (EMERG)","u":"https://emerg.eu/","ty":"research_network","c":"EU","d":"European biomedical ME research group formed with IiMER; annual meeting during ME Conference Week; DISCOVER-ME partner.","st":"active"},{"n":"EUROMENE (European Network on ME/CFS, COST CA15111)","u":"https://www.euromene.eu/","ty":"research_network","c":"EU","d":"COST-funded European network (2016-2020) that produced consensus diagnosis/management papers; now dormant.","st":"ended"},{"n":"IACFS/ME (International Association for CFS/ME)","u":"https://www.iacfsme.org/","ty":"research_network","c":"Global","d":"Professional society of researchers and clinicians; publishes Fatigue: Biomedicine, Health & Behavior; runs conferences.","st":"active"},{"n":"ICanCME Research Network","u":"https://icancme.ca/","ty":"research_network","c":"Canada","d":"CIHR-funded Interdisciplinary Canadian Collaborative ME research network.","st":"active"},{"n":"Long COVID Web (Canada)","u":"https://www.longcovid-web.ca/","ty":"research_network","c":"Canada","d":"CIHR-funded pan-Canadian long COVID research network.","st":"active"},{"n":"US ME/CFS Clinician Coalition","u":"https://mecfscliniciancoalition.org/","ty":"research_network","c":"US","d":"US expert clinicians publishing diagnosis and treatment guidance.","st":"active"},{"n":"NIH ME/CFS Research Network (CRCs + Data Management and Coordinating Center)","u":"https://www.mecfsnet.org/","ty":"research_network","c":"US","d":"NIH-funded network of ME/CFS Collaborative Research Centers with RTI DMCC; runs mapMECFS and MECFSnet newsletter.","st":"active"},{"n":"Nationale Klinische Studiengruppe ME/CFS (NKSE)","u":"","ty":"research_network","c":"Germany","d":"German national clinical trial group for ME/CFS, BMBF/BMFTR-funded, coordinated at Charité.","st":"active"},{"n":"PolyBio Long COVID Research Consortium (LCRC)","u":"https://polybio.org/","ty":"research_network","c":"US/Global","d":"PolyBio-funded consortium of labs studying viral persistence and tissue pathology in long COVID.","st":"active"},{"n":"UK ME/CFS Research Collaborative (CMRC)","u":"https://www.actionforme.org.uk/","ty":"research_network","c":"UK","d":"UK research collaborative (Action for ME secretariat historically) that ran annual research conferences and helped launch DecodeME.","st":"unknown"},{"n":"Lionhearted Science – United Against PAIS (WHN-PAIS conference network)","u":"https://whn-pais.org/","ty":"research_network","c":"Netherlands","d":"Organiser of the international PAIS (post-acute infection syndromes) conference, Amsterdam Aug 2026.","st":"active"},{"n":"Young EMERG (early-career researcher network)","u":"https://youngemerg.com/","ty":"research_network","c":"EU","d":"Early-career ME researcher network; annual workshop during Conference Week.","st":"active"},{"n":"OMF ME/CFS Clinical Research Network","u":"https://www.omf.ngo/","ty":"trial_network","c":"US/Canada/Sweden","d":"OMF-coordinated clinical trial network across ME/CFS clinics.","st":"active"},{"n":"RECOVER-TLC (Treating Long COVID)","u":"https://fnih.org/our-programs/recover-tlc-will-advance-long-covid-research/recover-tlc-faqs/","ty":"trial_network","c":"US","d":"NIH/FNIH long COVID treatment-trial programme selecting interventions via an open information request.","st":"active"},{"n":"STIMULATE-ICP (UK long COVID platform trial)","u":"https://stimulate-icp.org/","ty":"trial_network","c":"UK","d":"NIHR-funded integrated care pathway and drug trial platform for long COVID.","st":"ended"}]